{all on Fuji FP-3000B taken on my Polaroid 600SE}
Our youngest son, Weston, contracted RSV and has been up in the PICU @ Primary Children's Hospital since Tues(? its all a blur now). RSV is a scary but it is even scarier with a child who has a heart condition. Our son was born with Tetralogy of Fallot. Basically, he was born without a pulmonary valve and a hole in his heart. He was scheduled to have his first open heart surgery this coming Tuesday, but because of the RSV, it is now being pushed back 4-6 weeks.
The point of this post is 3 parts. 1 to publicly thank the countless number of staff @ Primary Children who really are all nameless to us as they come in drones in and out of his room during different shifts. They are all so helpful and KNOWLEDGEABLE! 2 to also publicly thank our family, friends and neighbors for their thoughts and prayers, who have watched the other 4 kids, brought dinners, and just made us laugh during this time. And 3 to update family and friends we have all over with some picts. And possibly 4 to better explain why to my current clients why I have not responded to emails as quickly as normal :). Thank you for your patience and I'll be in touch very soon.
I am not good at the medical mumbo jumbo they tell us at the hospital. I almost find it useless to hear their updates as all I want to hear is weather or not he is doing BETTER and when he is coming HOME. BUT, you can read updates about his condition on my wife's BLOG.
And on a happier not, a couple days before he went into the PICU he decided he was going to start crawling. Here is what he looks like normally not connected to 100000 machines :). Taken on my Fuji Instax Mini 7. Can you tell I am in love with instant film?
75 comments:
Hey Jonathan. Sorry to hear about what your little guy and your family is going through right now. Especially with the recent events of our dear friends the Norton's. I hope and pray that all goes well. Good luck, prayers and well wishes. -Larry
Thinking of you all, Jon.
I'm in tears right now. Those pictures are so touching. I watched my parents watch one of their children go through the hospital too and I know how painful that can be. Your family is definitely in my prayers. Please keep us updated.
You'll all get through this. I know it.
I am in tears as well. What a beautiful boy. Here's praying that he makes a turn for the better. Soon.
I stalk your blog and am constantly inspired by your photography. I wanted to tell you that your little Weston is in my thoughts and prayers. Our 11 year old was born with HLHS (his left ventricle did not develop) and he contracted RSV when he was about Weston's age. He was between surgeries when he caught it. We spent 4 days in the hospital but everything cleared up and he was eventually able to have his third surgery. At the time it seemed like such a huge hurdle but now that I look back at that time, it was so important for him to recover completely before going through a major surgery. I guess what I'm saying is that this too shall pass. Hang in there. Life will get better soon.
I can't imagine. It says so much that you thought to capture these moments. Thank you for sharing. I pray that he is well soon.
What the what??
Well, shoot.
As a father, I can't imagine what you and the rest of the family are going thru. I will keep Weston and the rest of your family in my thoughts and prayers.
Please, do not hesitate to reach out if there is anything I can do for you.
Blessings, my friend!
Our prayers are with you guys! I'm sorry you are going through this right now, there are now words of comfort or advice that can compare with the struggle of having a child in such a condition, but remember that God is there for all of you in your time of need and will meet you where you are. Your child is His child as well and He will take care of him. Having said that I pray he gets better soon for until the nothing else can relieve the anxiety you must feel.
Good news is just around the corner!
So sorry. Thoughts are with your family!
'Always inspired by your artistic vision, and now praying for you and your little one.
My prayers are with your family. Good luck!
Beautiful photos (crappy subject...except for beautiful W and Callie.) We are all praying over here with every ounce of our beings...we have a lot of ounces. Jothan especially is worried about Weston...he is a soft soul that one.
PLEASE let us know if there is anything we can do to help you guys out. Much LOVE. Mucho.
Huggs.
Thinking of you all, Jonathan.
thinking and praying for you!
So sorry Jon. The photos are so touching. May God continue to bless you and your family. You're all in my prayers.
Very sorry to hear this. My thoughts are with you and your family.
Thinking of you and Callie and the whole family. Thinking of adorable Weston.
I am getting really tired of babies in PICU.
We will be sending all of our California sunshine strait to him.
massive positive thoughts with your wife, you and whole family.
Hey Jon... I'm so sorry. That must be an incredibly frightening and heartbreaking experience. You and our family are in our thoughts and prayers.
Sad to see him tied down and sad to see your wife seeing him tied down. Prayers coming your way! Get better soon Weston.
i only know you through your blog, but your photography has been such an inspiration to me.
prayers are heading your way right now.
Prayers, prayers, prayers!!
For you, Callie, Weston, and all your kids too.
Praying for you!
Jon,
Steve called me to tell me Weston was in the PICU. Immediately, my girls and I gathered to pray for him and each of you.
Thank you for sharing your heart through your photos here. Your love and pain are visible.
May the Lord comfort you with His love.
Jon,
Steve called me to let me know Weston is in the PICU. Immediately, the girls and I gathered to pray. And will continue to.
Thank you for sharing your images here. Your love and pain are visible.
May the Lord comfort you with His love.
Dear Lord,
I pray for ultimate healing in baby Weston. Please uphold this family with your unending love and strength. Bring peace to their hearts and hope to their souls. I pray for Weston's comfort and for the comfort of his family. Thank you for your everlasting love. In Christ Name, Amen.
praying for your weston, and for your sweet family.
Love and good thoughts to your family.
my thoughts & prayers are with you & your family.
saw your news on kim's blog...
i've been on that same floor with my little guy who battled rsv. praying weston will make down to the 4th floor soon and that all will be well.
Oh, Jon. I'm so sad for you. My prayers and tears are with your family. I will call tomorrow and get his name put on the temple roll here too.
Jon I wish you all the best for you and your oh so sweet family! You will be in my prayers.
Jonathan, you are to do one thing, and one thing only: sit there, close your eyes, and send him healing. Send him love. I'm doing this now, from New York. I love you, little Weston. All is well, baby. All is well.
jon, so so sorry to hear this. my thoughts and prayers are with you. i'm with Rachel...no more babies in the picu.
I am your prayer warrior!!! I uplift your family in PRAYER, HOPE, LOVE, & FAITH!!! PRAYING ~ PRAYING ~ PRAYING (times a thousand) From the depths of my soul, I pray for Weston & for you all. Much love always,
Amanda
Praying for your family and Weston. You can see his beautiful spirit and energy.
Praying for your beautiful family and especially sweet Weston.
Jonathan...
Sending big prayers to you, Callie and the kids....
Paul, Nicki, Kate and Sparky
I don't know you personally but have loved your photography work. I am so sorry to hear about your son. I had two children in the NICU and it was so tough. Many people are praying for you and your family at this time. Hang in there...
I'll be praying for Weston and your family!
you are all in our thoughts and prayers.
We love you guys. Little Weston is in our prayers.
I've followed your blog for a while. You have taken pictures of people I know in Utah. I have to say the way you capture the human spirt with film is perfect & beautiful. Thanks for continuing to inspire me with my own photography.
It's always hard when you have a sick little one, even harder when complications are added to the mix. I will be keeping your little guy & your family in my prayers. Hope he has a quick & healthy recovery.
Prayers, thoughts, and white light to your family!!!
Prayers for little Weston! Hugs to you and Callie...I'm sure you're utterly exhausted...hoping for a speedy recovery.
prayers and tons of happy thoughts and vibes coming your way!!!
//ed & monica
Praying and fasting for you Weston. LOVE YOU JON AND CALLIE!!!!
- Richie
Jon - The last picture with your wife and Weston is a powerful image. I really hope he continues to improve.
Jon - The last picture with your wife and Weston is a powerful image. I really hope he continues to improve.
Jon
Your cute little family is in our prayers. May His spirit comfort and sustain you!
jonathan, i'm so sorry your little guy has rsv and is in the hospital. you and your little family will be in our thoughts and prayers.
brooke
I love that Weston is crawling! And wlll be home crawling more very, very soon. Please know that you are in our thoughts and prayers...
Though I don't know you, I know Natalie Norton and what an amazing woman and friend she has been to me since we were little kids and I know you are and your wife are dear to her, so it was through her I found you and your sweet son. Our prayers are with you and your family at this time and your sweet little guy. Praying for peace and comfort in such a scary situation and praying for him to heal quickly as well as for his health to be great for his upcoming surgery. One of my sweet cousins had I believe 5 open heart surgeries her first year of life. It was a VERY scary time. Its amazing to me everytime I see her now though and how healthy she is. She's now 14 years old and doing AWESOME. WOW. Get well Weston!!!
sending healing wishes his way and coping ones for the rest of the family. Hang in there...
Sending prayers your way. :)
Our hearts and prayers are with your family.
prayers for your sweet family:)
Jon, SUPER prayers for y'all and Weston. Like HUUUGE.
XoxO,
Lucky :)
Jon, I've been able to talk with Callie but wanted you also to know that our hearts and prayers are with your family right now. We think the world of you.
This really is a beautifully moving post. His crawling picture is so happy and cute.
He is such a beautiful baby. Love and prayers.
Big prayers for Weston!
Our prayers are with you, Canlas family.
All my positive thoughts for your little one!
oh my thoughts and prayers are with you guys! sending lots of love your way...
Sorry to hear the trials you are facing with what your little Weston is going through. My prayers are with him. I always love seeing people I know in your photos and I see you are in good hands with Janis, the PICU nurse in the third photo.
Sending prayers and best wishes to you & your family. My son Elias got RSV at 3 months and it can be so scary when they are young. Hoping for a full recovery soon. XOXO
Jon, we are thinking of you and Callie and especially your adorable little Weston. Please let me know if there is anything I can do for you!
Praying for you guys and your little hero.
mucho love.
I held Kim Orlandini's hand through RSV, I know she's always there to hold yours.
Best wishes and prayers on a swift and painless recovery for him.
I will be praying for all of you. I hope that your sweet little Weston will be healthy and back home very soon.
I just now read this post and saw these pictures, and I had tears in my eyes. God bless you guys for all things you've had to endure.
So sorry to hear about your son. Hoping he pulls through ok. What is amazing is that even in the midst of such stress and difficulty, you still create the most beautiful work.
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